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17 August 1990 at 9:31 am Alex Edwin Hale was born!
Somebody said that it couldn’t be done, but Rich and I didn’t listen!
It took numerous visits to the infertility clinic and many disappointments, including a miscarriage and just days before the invitro, I was molested by a doctor! I almost did not go through the procedure, but with Richard’s support and love and our desire to have a child together, I am so glad I did! The sticky sperm separated enough to fertilize the egg that would develop into Alex, our son.
Today 29 years later, I could not be happier with the young man he is. He too has had his battles from infancy to today, but he continues to get stronger with the adversity of life and is a joy to all who get to know him. Alex continues to amaze me with the knowledge he possesses and the kind heart that is very vulnerable. His talents are remarkable, and yet he does not boast or think he is above or beyond others.
Alex is always the first as well as the last one to care for another, and he lives his life-giving to others, that is his true happiness.
To say I love him to the Moon and Back is not enough to express my mother’s love and respect for him. Join me in wishing Alex (the sports genius with the melodic voice) a H A P P Y B I R T H D A Y!
August 2, 2016, I received a call from my brother Joel. Just shortly before he called me, he learned that our mother had suffered a stroke. That morning still stands out in my mind, as Rich left for work, I went out on our back patio and decided to dig up and transplant a spider plant. The plant was barely growing between two well-thriving hostas. As I freed this struggling plant and replaced it in front of my patio doors, I felt as if I had just completed a decisive action. With a feeling of satisfaction, I smiled, knowing that it was going to be a good day until I received the phone call. That plant today is growing and sprouting new baby shoots each year.
I remember feeling a sense of disbelief; my mom was a strong woman who was 96 ½ years young. My brother had to have his information wrong. However, after promising him, I would get myself together and drive to Michigan to be with mom, I followed up with the hospital to learn her condition was concerning. (Now what does that mean?)
After getting my family situated, Rich, Alex, and I set out for Detroit. All we knew at that time was she had suffered what appeared to be a stroke, was blind, and had no idea what happened, or if anything happened. She had no concept of being blind; she saw what she wanted *in her mind.
Arriving hours later as I approached her hospital room, I feared the worst and hoped for the best. Mom was sleeping, as I slowly approached her and woke her up. She sounded like mom, although a bit confused as she began asking questions about why she was in the hospital. She said she felt fine and wanted to go home. I reassured she would be staying at the hospital for at least the night we had to identify what may have happened. Again, she still had no idea she was blind.
August 2, 2016, took us all on a journey we never expected or planned.
From August 2, through October 11, 2019, I was blessed to spend my mother’s last weeks with her. It was during this time I was able to talk to my mama in a manner I never thought I could. We went from what I depicted as a love/hate mother-daughter relationship to a loving, trusting, mother-daughter experience. I grew up during those weeks, even though I didn’t feel ready for the challenges I faced.
I have not felt the same since the transition from Summer to Fall in 2016. I have held on to the good memories from those weeks, the stories my mama told, some over and over again, while others were in fragments that I may never know the full meaning. During this period, I felt like I was in limbo just as much as my mom. Although there was no hope for her recovery, we also had no time table of her fate. Each day was a blessing and a miracle until she died.
I have been told by the rabbis and the scholarly Jewish community that my mother’s death on the Eve of Yom Kippur, October 11, 2016, was a mitzvah. My mother was absolved of all her sins in 2076, written into the book of life, and with 2077 on the horizon, she would leave this earthly world in the presence and acceptance of G-D. However, ever year, Yom Kippur rolls around as I pray for life,I now remember my mother’s life and the love she shared.
August the 2nd will always remind me of the opportunity I had to care for my mother and create a heartful of loving memories!
This is my opinion – Karen Moss Hale
Last night I had no intention of watching Part 1 of the Democrats Debate. However, I did watch it, and I was amazed at the talent and mostly the compassion in many of these #WANT-2-B-Presidents. I went into this not wanting to like Elizabeth Warren, thinking she had her chance in 2016, but I see a different person in her now. She truly cares; she is the mom, teacher, nurse, doctor, and mentor that we need. Yet I saw the spark in the eyes of others who I felt were also believable. I have trusted Julian Castro since his introduction through Obama years ago. I understood the use of Spanish and English in his remarks last night, however, when my grandparents and yours came here from far-away lands speaking in their tongue, part of becoming a U.S. citizen was learning English and be capable of communicating with all. I am not against having a native language like Spanish, French, Yiddish, etc., but we all must learn to speak in the same language. We are a melting pot, and we must be able to blend together, bringing our strengths to the table and improving upon our weaknesses.
Personally, Cory Booker is another fine politician and human, and he reminds me of President Obama, and for my family and me although we had our own personal struggles during his period in office, we felt safe and optimistic. The stats from last night say Booker and Castro were at odds with each other and this is something that we must overcome. The Democratic System is about choice, freedom, and rights. It is also about collaboration and not compromise. Many of the #WANT-2-B-Presidents said it; it is not about starting a new project; it is about taking what we have and making it better. Whether you agree or not, that is what the Affordable Care Act was about. It was the starting point to help provide that all AMERICANS have affordable care despite their age and or income level! Why should we throw the baby out with the bathwater when we can hold tight to the baby and reconstruct the bath temperature?
Tonight is yet another #WANT-2-B-Presidents debate, and I am sure there will be a lot more rhetoric being spewed, some real and like some else says, some fake! However, we are still living in a free country where we can listen, observe, discuss, and make the right decision.
- Healthcare is a given if we are going to grow and capable of living full lives.
- Education must allow teachers to instruct, guide, and mentor, stop putting handcuffs on them, and education must be equalized for all no matter how economically rich or poor the community is!
- The government must listen to the constituents, hear what they want, need, and require to be leaders in their families, communities, and beyond.
- Stop creating wars, communication with our Ally’s and Enemies must be the focus and not threats that bring on retaliation.
- We MUST face the fact we are killing mother earth, and we have the ability to stop it. New innovations are at our fingertips, and these skills can be taught and change both the political and natural resources climate.
Before my mother died in 2016, I promised her that Donald Trump would not be elected. Sadly, I could not keep my promise. Many people enjoyed his promises about “Making America Great Again,” the problem was, it was already Great, and now it is in pain! We need a new doctor in the house.
Good Morning World! Although we all may feel safe in the cocoon of our own home, family, and friends, there are many outside forces producing unrest and fear. It is necessary for us, you, me, and all those we know to take a step out of our comfort zones and begin challenging the odds.
Whether you watched the ABC special last night of the “Flying Wallendas” crossing over Times Square, it was fearful as well as amazingly exciting. Although this is not a feat for most of us to attempt, the concept of facing one’s fears and taking one step at a time is something we all can and should do.
Despite our political beliefs, we must find a way to collaborate and communicate. The art of communication is listening and dissecting fact from fiction. If we do not confront our distress of the real news and listen only to the fake news, we will not be capable of moving forward and growing.
On this first Monday of Summer 2019, find the sunshine behind the clouds, and be the change you want to see in this overwhelming world. Take a deep breath and smell the roses, the rain, the freshness of life. If it feels musty and moldy, this is your opportunity to light the way and clean up the remnants.
Empower yourself while lending a hand to those who may need guidance.
Back home and still on a roll from this past weekend. If you have never been to upstate New York and driven through the Finger Lakes Region or to the Capital area like Saratoga Springs you are missing some beautiful country. It is true that Rich and I attempted to see the many massive waterfalls in and around Watkins Glen, New York, https://parks.ny.gov/parks/142/ where we had planned to view and photograph one, two or more of the 19 Waterfalls. Sadly, the directions a local provided us were incorrect, and all we saw was a beautiful countryside with numerous Wineries. However, we did see ButterMilk Falls outside of Utica where we stayed and got some nice photos there! All in all, we laughed during our adventure and get away!
Saratoga Springs and Annie’s Washington Inn (Joe) did not disappoint us at all. It is always a lovely stay at this Bed and Breakfast that also hosts weddings and parties and receptions of all types. The setting is not only beautiful, but the Inn is immaculate. Joe is the treasure at the helm!
The musicians and talented individuals of this area are always friendly, welcoming, and exciting to spend time with. This very special area has few if any EGOS flying high. On Sunday, a diverse group of musicians participated, providing their talent to honor Charlie Eble, who had a heart of gold and provided for this region. In his memory, the city of Saratoga Springs, Mayor Meg Kelly, Café Lena, led by Sara Craig and her team (many volunteers), my brother Joel Moss producer and music engineer, joined newclevelandradio.net, to bring musicians together in song and harmony.
A special thanks to all:
Charlie Eble A/V Internship feel free to donate at http://www.caffelena.org/
Alex Hale, Garland Nelson, Vinnie Leddick, Patty Urell, Jonathan Greene, Sergei Nirenburg, Brian Melick, Bob Warren and Mark Griffin, Judy Wyle, Ralph Pascucci, Jeff Halstead, Michael Jerling, Will Severin, Joe Bruchac, Chris Baker. Ria Curley and Chuck Lamb, John Nazarenko, Tim Wechgaelar, and Chris Carey. Marcus Ruggiero, Peter Davis, Steve Candlen, Rick and Sharon Bolton, Jeff Brisbin & Joseph Deuel.
(I HOPE I DID NOT LEAVE ANYONE OUT!)
Now that we are home, it is time to start planning next year’s event for the Charlie Eble A/V Internship Concert Connection. Do not let the grass grow under your feet – spread the word as you continue to bring the language of music to all that hear you perform.
We would like to continue our podcasts with you and begin with sharing your thoughts, your memories, and your passion for all that you do! firstname.lastname@example.org
The following is something I read on Facebook today, although I do not know this mother personally, I understand her story all to well. I believe her story, as I have seen this all too familiar scenario played out due to ignorance as well as unawareness to our special needs community. Our communities are not comprised of all perfectly “normal” human specimens. In fact, the quote that normal is only a setting on a washing machine or dryer is very true. As we are all snowflakes, not one of us is identical to another, we all have our quirks.
When will we learn to be tolerant, accepting, and encompass the diversities we encounter on a daily basis? When trusted medical doctors, nurses, and other healthcare officials cannot be trusted, it is time to change the system. Approximately 17 years ago a Psychiatrist at the Cuyahoga County Board of Mental Retardation, informed my son (who was 11 at the time), my husband and myself, that he (our son) should give up his dreams and passion for baseball. She told him his dreams were too lofty and that he was destined to living in a half-way house and performing menial jobs.
As parents, we refused to listen, and we argued with her that she was wrong despite a complete case study she provided us with to prove her point. Today, not only did my son graduate high school with a 3.0+ GPA, attend college and receive a BS in Business Management, he has also been an Autism Advocate, and for over a year he has worked with the Cleveland Indians and has accepted two advancements. He is living his passionate dream despite the ignorance of a “trusted” professional. If we had listened and given into her diagnosis (not the one of our son’s neurologist) we would have not only ruined our son’s life but destroyed much of ours as well.
Anyone who knows someone on the spectrum most likely has a similar story, and we must continue to bring the REAL SPECTRUM AWARE to light. April may be Autism Awareness Month, but for the one out of sixty-four and their families, Autism Awareness must be every day. #IGNORANCENOTACCEPTED! #webothhavesonsbythenameofAlex
APRIL IS AUTISM AWARENESS/ACCEPTANCE MONTH
Why this is so important to me and many of my very dear friends…
Our story that changed me forever…
June 2015 Alex had a horrible sinus infection. He was in terrible pain, but because his verbal skills are limited, he did not know how to express how he was feeling. All he knew is he needed relief from the pain. He ended up hitting himself which resulted in 2 black eyes. As my poor “Gentle Giant” baby was lying in bed that night, his eye started to bleed. Although I was very skeptical on how he would be treated there I knew (thought) he needed to go to the hospital where they would give him something to make him feel better. And that my friends is where Alex and my Horrific Nightmare Began…
Before this, I think we kind of lived in a bubble. Beachwood is kind of a small town where most people know each other. So most people knew Alex for the funny, smart, fun loving, Gentle Giant he is. On top of that, he attended an Autism School. So acceptance in the community was just part of our world. Never did I imagine he would go to a hospital 10 minutes away from our house where the minute he came through the doors, he was treated like a monster.
All these doctors saw was a 6’4” man with 2 black eyes not happy. They didn’t care that he was not happy because he was in pain. When I told them he had autism, they actually said to me “We have never had anyone here with autism before” I called Bullshit on them. “Really? 1 in 64 and he is your first?”
They put him in 4 point restraints and sedated him. They would not treat his sinus infection even though I insisted. I stayed with him 24/7. I slept in a metal folding chair and only left for a couple each night when someone I trusted at the time would come so I could shower. I heard and saw everything that went on. I would tell them he is in pain. I would beg them to give him something for his pain. They would say “He is sedated he doesn’t feel anything” I could see he was in pain. They didn’t care. To them, he wasn’t a person. He got pneumonia and ended up on a ventilator. This went on for 3 WEEKS! I fought with them, I yelled they DIDN’T CARE!! I tried telling them what a wonderful boy he is. THEY DIDN’T CARE!! To them he was a very large disabled “monster” The doctors would talk around me. Like I wasn’t there. They told me if he got out they wanted to send him to a mental hospital. They treated him like a crazy monster. They didn’t care; I was his mother and legal guardian. They acted like I knew nothing about him. They didn’t believe anything I told them. Me and others that saw him never said the words but knew he was going to die there. They were going to kill him. I begged for him to get transferred out of there. I thought of ways to sneak him out. Finally, after 3 weeks, they sent him by ambulance to the main Clinic where after 2 more weeks they were able to get him off the ventilator. He was left immobile. They wanted to send him to rehab, and I said “NO. NO MORE. I WILL DO ANYTHING AND EVERYTHING TO HAVE HIM REHAB AT HOME!”
Thank God Alex has the Fershtman determination and hard work ethic. It took a while but he had to learn to walk and feed himself again. And most importantly he had to learn to TRUST again.
He had nightmares from this experience. I slept with him every night for 1 year. I still have nightmares. And unlike Alex, I have not learned to trust again.
You know how they say “Once you are in Hell nothing else frightens you” It is true. I was there and I do not get intimidated by anything anymore. Alex and I are both fighters. We are survivors. If we made it through Hell we can make it through anything!
Even making this move. I knew it was the best thing for both of us but I thought the transition might be a little hard for him. However, I knew we would get through it. If we survived our horrific nightmare we would survive transition issues. Thankfully he has been so happy here since day one! I promise This will NEVER HAPPEN TO ALEX AGAIN! I WILL DO ANYTHING AND I REALLY MEAN ANYTHING TO MAKE SURE IT DOESN’T!! And I also promise I will make sure everybody will always treat him as the sweet, loving funny person he is!
AND WE AS A COMMUNITY NEED TO MAKE SURE THAT WHAT HAPPENED TO ALEX NEVER EVER HAPPENS TO ANYONE AGAIN!!!
REMEMBER, PEOPLE WITH DIFFERENT NEEDS ARE STILL PEOPLE AND DESERVE TO BE TREATED AS PEOPLE!!! NOBODY’S LIFE IS WORTHLESS BECAUSE THEY HAVE ANY KIND OF SPECIAL NEEDS!!!
And I don’t care who you are if I hear you say otherwise I will call you out on it every time!!!
THIS IS NOT A POLITICAL STATEMENT SO PLEASE DON’T MAKE IT ONE!
THIS IS A STATEMENT ABOUT PEOPLE PERIOD!!!
AND A STATEMENT ABOUT AUTISM AWARENESS AND ACCEPTANCE!!
ps. I cannot promise that this is my only Autism Post this month… so Buckle Your Seatbelts Kids!!
***Annette Scott & Sandi Fershtman – thank you for sharing and now let’s home we can touch the hearts of humanity (and medical professionals) to understand that Autism touches us all!
Well, it has been a whirlwind around here both in the house of the HALE family as well as newclevelandradio.net. March is birthday month for both my husband and me, and I am exactly three weeks older than him almost to the minute. Richard (my husband of thirty-five years,) is my best friend. When you spend 35 years with someone as intimately as we have there are days when you hate (ok, dislike) the person you love. We both have had our share of those days, but love in our case does conquer all!
In addition to birthday’s many of you know I have been battling the migraine issues again, and I am awaiting an appointment with a neurologist in April. Not that I have wanted to wish March away but leaving the winter behind and finally getting the opportunity to find some answers for my headaches I will be glad to say good-bye to March (Madness.)
April looks exciting to me as the Cleveland Indians return on April 1st, for another fun season. Although I am hoping for a winning one, I just enjoy the boys of summer, and I will not get into the politics of the game and players! So let’s play ball! Peanuts anyone?
In addition to baseball, newclevelandradio.net will be introducing a new show with local musician, comedian, and writer, Charlie Wiener. Charlies is my favorite writer, and I am excited to say we will be discussing his books, his characters, who they truly are or are not and ask you our followers to read, listen and participate.
Also in the month to come, CARE NOTES with Doug Wilber from Cherished Companions returns. New episodes on home care for the elderly, special needs, or even good old everyday assistance. We have touched on this message in the past with so many of us living a fair distance from our loved ones, or unable to assist, businesses like Cherished Companions are a necessity, but they tend to do it as an award-winning organization.
Senior Moments will be returning as well, no official date has been set, but I understand Bradley and Heather Greene have a lot of new topics to cover as well as hear what is important to you.
My life is a blessing despite my migraines. I am working with a variety of very interesting people, and every show delivers a message of hope with smiles, hugs, and friendship. If we cannot provide a hand in person, we hope we are doing so virtually.
Our podcasts are now available on Spotify if you search the name of the podcast it will pop up for you or go to the page of the show to follow the link. https://newclevelandradio.net/podcast-replays/
Happy Spring and let’s continue to support each other in harmony!
It is Sunday, for many considered a day of rest that may consist of sleeping late into the late morning or early afternoon hours. Years ago, Sunday was my lazy day, waking up to a new week, brunching or lunching with my husband, running errands in joyous harmony to GOLD CIRCLE™, prior to the TARGET™, days. We always found a bargain or two while picking up the essentials like toilet paper, napkins, laundry soap as well other fine household items we didn’t need. As we sauntered through the aisles we knew at the end of this weekly journey we would take our stash home and realize we forgot the most important item of the week, but we never identified what that item was!
Remember Yesterday – Live for Today
Those were the days when we first bought the Sunday newspaper, The Plain Dealer™, and cut out the coupons and checked out what was on sale before we stepped inside the doors of our Sunday retreat. The newspaper was more golden than the GOLD CIRCLE™. The Sunday edition was packed full of fun stuff like the comics in living color, and Parade Magazine™ that was sure to have a story of fun-filled information for reading, not scanning. That paper went to breakfast with us, and we staled out our time as did many weeding through the paper from the front page headlines to the comics, magazines, ads, and flyers. Great articles appeared in The Plain Dealer™, Jane Scott, Michael Heaton, Connie Schultz, Terry Pluto, and my friend Chuck Yarborough, just to name a few.
“Sunday, Sunday here again in tidy attire
You read the color supplement, the TV guide”
Today, Sunday is just another day, working; as most of us have more than one job in today’s economic debacle. I feel blessed as I am about to reach the big 69 tomorrow that I am able and capable to be on my feet supporting sales and earning a few extra dollars. I do this because I have learned through my upbringing that we must continue to venture through life and not only adapt to changes but to change for the betterment without bitterness. I may have been raised in the 50s and 60s with the voice of encouragement telling me that if I worked hard, I too would have a suburban home, two cars in the garage and much more than just a chicken in the pot. However, to maintain all that I was encouraged to work hard for comes with a price.
Appreciating Yourself so Others will Too!
I could complain that as I reach this pinnacle in life that I am still scratching and clawing to build a better lifestyle (not necessarily all financial), that will allow me to live fully. That lifestyle includes working on Saturday and Sunday and meeting new people and supporting their wants and needs providing guidance. My weekend gig is much like my weekday life with newclevelandradio.net, I work with various individuals, and I am their guide and support in sharing their message, compassion, and life providing us all options on which fork in the road will lead us to Sunday, the first day of the week.
Treat Sunday, Monday, Tuesday, Wednesday, Thursday, Friday, and Saturday
As the Days to Love Yourself and Wish Yourself
A Happy Birthday
HAPPY BIRTHDAY TO ME
I could blame Charlie Wiener for the fact that I am wide awake at 4:33 a.m., on a Sunday morning. However, it is because of Charlie that I am filled with the enthusiasm that life provides. I am cherishing his writings in, American Stories, just as I did in the sequel, Carrie Come to Me Smiling.
Like the character Kim, we all have lived a life that too often we look back on and say; it’s not enough; my existence means nothing. We may think that everyone is succeeding while we are barely capable to tread water. Our accomplishments whether little or big have been buried in the crevices of our brain and we do not acknowledge them. Instead for many of us, myself include, spelled in all CAPITAL LETTERS, wake up one day and ask is this LIFE?
Sadly for some, they run away from all that they have created, accomplished, and achieved, and try to start anew. The truth is we cannot run away from ourselves, but we can learn from the past and remold ourselves. We, you and I are the designers of this moment in time. Nothing will change for the better or worse unless we mold the clay, pick up a paintbrush and add some color to the landscape or sketch out the inner feelings that may be holding us back from appreciating the beauty of life.
Some people wait until an event in their life rings a bell and allows the freedom to choose. The bell may be a lottery winning or a diagnosis of what we may refer to as “ill”-fate. The reality is a lottery winning may cause other ill-fated issues, whereas a diagnosis of dying is something we all live with from the moment we are born. For some the end comes sooner than for others, but, it is up to each of us to make the most of each day and to not squander it away.
Our world is filled with books that tell stories some are fictional others are based on facts, research, and emotional concepts. Reading can provide us with inspiration and a road map. The road map is not going to be a straight line; it will have curves and ups and downs and detours as well as roadblocks. However, it is up to us as the intelligent life form to find our way, not allowing the walls to close in on us.
Kim, the character in American Stories is on a path collecting stories, and although the strangers she meets are as different from her as night is to day, there is a commonality. The commonality is that we are all trying to find, the comfort of peace within ourselves so we may enjoy the beauty that surrounds us. This is what empowers me to share my journey with you and to create a platform where we come together as different individuals finding our sameness. Charlie has captured my soul in his writing; I feel as if he is writing about me as well as you!
Empower yourself to live. It is Sunday, February 24th, 2019, do not waste another minute. My dear friend, Norman Tischler lived life to the fullest. The riches he recently left behind are the people whom he touched, whether with his music, his words, a bear hug, or just a look that said, “I love you!” I now belong to a world of strangers who are friends by association and the enthusiasm of being part of the story!
As I read American Stories, by K. Adrian Zonneville, aka Charlie Weiner, I now know that these books were written for a much deeper purpose than Charlie will ever understand, nor will I. You see, when I chose to really live my life, not just go through the motions, I became interested in helping others in a manner in which my future would be enriched. Enrichment is not in the form of financial gain, although a little extra in the pocket and bank might provide a little less of a burden, the love and friendships I am adding into my experiences here on earth are much more valuable.
As a young child, from the age of 9 or 10 years old, I struggled with making friends and being accepted. Just prior to puberty I became gawky and unsure of myself. I wanted so much to be part of the IN GROUP I literally pushed myself out of the inner circles. However, looking back with hindsight, I was not totally on the fringe, I was somewhere between the core and edge, and if I had known what empowerment was, I may be a different person today.
My desire to be part of the click ate at my soul and caused me many embittered thoughts that I carried on my back that weighed me down. I allowed my pre-pubescent years to hold me in a place that was not safe. I did creep out of that maze of feelings throughout my life, but I kept getting pulled back like I was tethered to that time. However, within the last five years I cut the teether and have begun running through the maze of life with hands up over my head, and every once in a while you may actually hear my shouts of ‘Glee.’
Reading American Stories, I understand that my mission in life is to experience and guide and be guided. I am no longer living with clouded eyes and heart, I am open to awareness, and that is what empowers me. I have no guarantees as to what tomorrow will bring, but I have the control to make each moment my best. I must continue to breathe in the life that guides me!