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INVITATION???

Every day is labor day and yet four days from today, Monday, September 2, 2019, is officially Labor Day.  Since 1894 we have honored the first Monday in September dedicated to the social and economic achievements of Americans.  For some, it will be just another day to work, well for others an excuse to party, picnic, drink, and grill out.  However, there will be many who will be all alone, and that person may be a relative, a friend or a neighbor.  Do not take for granted that someone you know is not alone and lonely.  When was the last time you invited someone to join you at your table?  In Yiddish, we say it is a “mitzvah” for observing and caring for another.  Maybe this weekend would be an excellent time to think of someone other than ourselves.

 

I used to be the one who welcomed others to our home, and yet no reciprocal invitations came back.  I didn’t expect or need one in return. Over the years, it would have been nice to be on someone else’s guest list.  Even when you have a spouse, significant other, or child in your home, sometimes it is just nice when someone else does the asking.

 

Take a moment and ask yourself how you would feel if you were not included in on the celebrations, whether for Labor Day, Thanksgiving, Christmas, Chanukah, or even Ground Hogs Day.  It doesn’t take much to reach out and become the bigger person.  Do it you might like it! 

CAFE LENA lets do it AGAIN!

To my Saratoga and Capital Area Musicians;

It was just three months ago we honored the memory of Charlie Eble and raised money for the new internship program. Well, newclevelandradio.net would like to suggest we do it again and start planning it now. Since that spectacular event in May, I have heard from many of you sharing the comment, you would like to do this again (and again). Charlie has provided us the opportunity to put you all together and share the universal language that kept his toes tapping.

So, I begin by asking Patricia Eble Urell, Joel Moss, Sarah Craig, Jim Mastrianni, and Meg Kelly, are you all in? If so let’s select a date and start planning. It seems like we may have missed out on some musicians that were either out of town or had commitments for the day. The sooner we select a date the easier it will be for the performers to schedule the day.

Some of the comments I have received included starting the event later in the day into the evening. Midday for many is a difficult time to attend, and we could see if it brings more people in. Also if we get it on the Café Lena Calendar early enough we might draw more people including the Concert Window.

I look forward to hearing from all of you, you make me smile!

Happy Birthday A L E X

17 August 1990 at 9:31 am Alex Edwin Hale was born!

Somebody said that it couldn’t be done, but Rich and I didn’t listen!

It took numerous visits to the infertility clinic and many disappointments, including a miscarriage and just days before the invitro, I was molested by a doctor!  I almost did not go through the procedure, but with Richard’s support and love and our desire to have a child together, I am so glad I did!  The sticky sperm separated enough to fertilize the egg that would develop into Alex, our son.

Today 29 years later, I could not be happier with the young man he is.  He too has had his battles from infancy to today, but he continues to get stronger with the adversity of life and is a joy to all who get to know him.  Alex continues to amaze me with the knowledge he possesses and the kind heart that is very vulnerable.  His talents are remarkable, and yet he does not boast or think he is above or beyond others.

Alex is always the first as well as the last one to care for another, and he lives his life-giving to others, that is his true happiness.

To say I love him to the Moon and Back is not enough to express my mother’s love and respect for him.  Join me in wishing Alex (the sports genius with the melodic voice) a H A P P Y B I R T H D A Y!

August 2 What it Means to Me!

August 2, 2016, I received a call from my brother Joel.  Just shortly before he called me, he learned that our mother had suffered a stroke.  That morning still stands out in my mind, as Rich left for work, I went out on our back patio and decided to dig up and transplant a spider plant.  The plant was barely growing between two well-thriving hostas.  As I freed this struggling plant and replaced it in front of my patio doors, I felt as if I had just completed a decisive action.  With a feeling of satisfaction, I smiled, knowing that it was going to be a good day until I received the phone call.  That plant today is growing and sprouting new baby shoots each year.

I remember feeling a sense of disbelief; my mom was a strong woman who was 96 ½ years young.  My brother had to have his information wrong.  However, after promising him, I would get myself together and drive to Michigan to be with mom, I followed up with the hospital to learn her condition was concerning.  (Now what does that mean?)

After getting my family situated, Rich, Alex, and I set out for Detroit.  All we knew at that time was she had suffered what appeared to be a stroke, was blind, and had no idea what happened, or if anything happened.  She had no concept of being blind; she saw what she wanted *in her mind.

Arriving hours later as I approached her hospital room, I feared the worst and hoped for the best.  Mom was sleeping, as I slowly approached her and woke her up.  She sounded like mom, although a bit confused as she began asking questions about why she was in the hospital.  She said she felt fine and wanted to go home.  I reassured she would be staying at the hospital for at least the night we had to identify what may have happened.  Again, she still had no idea she was blind.

August 2, 2016, took us all on a journey we never expected or planned.

From August 2, through October 11, 2019, I was blessed to spend my mother’s last weeks with her.  It was during this time I was able to talk to my mama in a manner I never thought I could.  We went from what I depicted as a love/hate mother-daughter relationship to a loving, trusting, mother-daughter experience.  I grew up during those weeks, even though I didn’t feel ready for the challenges I faced.

I have not felt the same since the transition from Summer to Fall in 2016.  I have held on to the good memories from those weeks, the stories my mama told, some over and over again, while others were in fragments that I may never know the full meaning.  During this period, I felt like I was in limbo just as much as my mom.  Although there was no hope for her recovery, we also had no time table of her fate.  Each day was a blessing and a miracle until she died.

I have been told by the rabbis and the scholarly Jewish community that my mother’s death on the Eve of Yom Kippur, October 11, 2016, was a mitzvah.  My mother was absolved of all her sins in 2076, written into the book of life, and with 2077 on the horizon, she would leave this earthly world in the presence and acceptance of G-D.  However, ever year, Yom Kippur rolls around as I pray for life,I now remember my mother’s life and the love she shared.

August the 2nd will always remind me of the opportunity I had to care for my mother and create a heartful of loving memories!

#1 Going Forward

Today is the day I begin my dream.  Dreams are not just for sleep or zoning out in the middle of the day.  Although that form of dreaming can be inspirational if we focus on what we want and set goals to reach it.  If we don’t, we can be stranded in the what if’s of life.  I refuse to be trapped in my thoughts as I have spent a large portion of my life dreaming, wishing, and wanting.  I have ventured out into the what appears to be the cold dark world with doubters. This time, I will not be stopped by those who chose to impact me negatively.

 

When I elected to take this venture into writing, I began with blogging.  I believe the best blogs I have written are based on self-reflection that others may associate with.  When I receive feedback, I experience an overwhelming sense of wellbeing that I am not the oddity I thought I was.  Blogging, journaling, or writing a book can give me/you a clear picture of the meaning of life.  (Don’t worry I am not going to get deep and dark here.)

 

So, have you guessed my dream?  It is writing a book based on my blogging journals that may not only be my story but yours as well.  I am beginning the climb up the mountain, and I will continue forging ahead.

 

I am looking forward to the feelings of achievement that only I am capable of producing for myself.  I hope you will join me on my climb while I reach for the apex

#WANT-2-B-Presidents

This is my opinion – Karen Moss Hale

Last night I had no intention of watching Part 1 of the Democrats Debate.  However, I did watch it, and I was amazed at the talent and mostly the compassion in many of these #WANT-2-B-Presidents.  I went into this not wanting to like Elizabeth Warren, thinking she had her chance in 2016, but I see a different person in her now.  She truly cares; she is the mom, teacher, nurse, doctor, and mentor that we need.  Yet I saw the spark in the eyes of others who I felt were also believable.  I have trusted Julian Castro since his introduction through Obama years ago.  I understood the use of Spanish and English in his remarks last night, however, when my grandparents and yours came here from far-away lands speaking in their tongue, part of becoming a U.S. citizen was learning English and be capable of communicating with all.  I am not against having a native language like Spanish, French, Yiddish, etc., but we all must learn to speak in the same language. We are a melting pot, and we must be able to blend together, bringing our strengths to the table and improving upon our weaknesses.

Personally, Cory Booker is another fine politician and human, and he reminds me of President Obama, and for my family and me although we had our own personal struggles during his period in office, we felt safe and optimistic.  The stats from last night say Booker and Castro were at odds with each other and this is something that we must overcome.  The Democratic System is about choice, freedom, and rights.  It is also about collaboration and not compromise.  Many of the #WANT-2-B-Presidents said it; it is not about starting a new project; it is about taking what we have and making it better.  Whether you agree or not, that is what the Affordable Care Act was about.  It was the starting point to help provide that all AMERICANS have affordable care despite their age and or income level!  Why should we throw the baby out with the bathwater when we can hold tight to the baby and reconstruct the bath temperature?

Tonight is yet another #WANT-2-B-Presidents debate, and I am sure there will be a lot more rhetoric being spewed, some real and like some else says, some fake!  However, we are still living in a free country where we can listen, observe, discuss, and make the right decision.

  • Healthcare is a given if we are going to grow and capable of living full lives.
  • Education must allow teachers to instruct, guide, and mentor, stop putting handcuffs on them, and education must be equalized for all no matter how economically rich or poor the community is!
  • The government must listen to the constituents, hear what they want, need, and require to be leaders in their families, communities, and beyond.
  • Stop creating wars, communication with our Ally’s and Enemies must be the focus and not threats that bring on retaliation.
  • We MUST face the fact we are killing mother earth, and we have the ability to stop it. New innovations are at our fingertips, and these skills can be taught and change both the political and natural resources climate.

Before my mother died in 2016, I promised her that Donald Trump would not be elected.  Sadly, I could not keep my promise.  Many people enjoyed his promises about “Making America Great Again,” the problem was, it was already Great, and now it is in pain!  We need a new doctor in the house.

Back Home Planning for 2020!

Back home and still on a roll from this past weekend.  If you have never been to upstate New York and driven through the Finger Lakes Region or to the Capital area like Saratoga Springs you are missing some beautiful country.  It is true that Rich and I attempted to see the many massive waterfalls in and around Watkins Glen, New  York, https://parks.ny.gov/parks/142/ where we had planned to view and photograph one, two or more of the 19 Waterfalls.  Sadly, the directions a local provided us were incorrect, and all we saw was a beautiful countryside with numerous Wineries.  However, we did see ButterMilk Falls outside of Utica where we stayed and got some nice photos there!  All in all, we laughed during our adventure and get away!

Saratoga Springs and Annie’s Washington Inn (Joe) did not disappoint us at all.  It is always a lovely stay at this Bed and Breakfast that also hosts weddings and parties and receptions of all types.  The setting is not only beautiful, but the Inn is immaculate.  Joe is the treasure at the helm!

 

 

The musicians and talented individuals of this area are always friendly, welcoming, and exciting to spend time with.  This very special area has few if any EGOS flying high.  On Sunday, a diverse group of musicians participated, providing their talent to honor Charlie Eble, who had a heart of gold and provided for this region.  In his memory, the city of Saratoga Springs, Mayor Meg Kelly, Café Lena, led by Sara Craig and her team (many volunteers), my brother Joel Moss producer and music engineer, joined newclevelandradio.net, to bring musicians together in song and harmony.

A special thanks to all:

Charlie Eble A/V Internship feel free to donate at http://www.caffelena.org/

Alex Hale, Garland Nelson, Vinnie Leddick, Patty Urell, Jonathan Greene, Sergei Nirenburg, Brian Melick, Bob Warren and Mark Griffin, Judy Wyle, Ralph Pascucci, Jeff Halstead, Michael Jerling, Will Severin, Joe Bruchac, Chris Baker. Ria Curley and Chuck Lamb, John Nazarenko, Tim Wechgaelar, and Chris Carey. Marcus Ruggiero, Peter Davis, Steve Candlen, Rick and Sharon Bolton, Jeff Brisbin & Joseph Deuel.

(I HOPE I DID NOT LEAVE ANYONE OUT!)

Now that we are home, it is time to start planning next year’s event for the Charlie Eble A/V Internship Concert Connection.  Do not let the grass grow under your feet – spread the word as you continue to bring the language of music to all that hear you perform.

We would like to continue our podcasts with you and begin with sharing your thoughts, your memories, and your passion for all that you do!  newclevelandradio@gmail.com

It’s Almost that TIME

Rich and I will be arriving tomorrow afternoon sometime – we are staying at Anne’s Washington Inn.  If any of you are playing around town tomorrow night please post it to me on Facebook as we may try to make the rounds, Marcus, Jeff, Steve, etc., …

Also, anyone who has not done a podcast with us and still has an interest please contact me and let me know, we will continue to do stories after May 19th

In the meantime, I plan to be at Uncommon Grounds Saturday morning around 10 am if you or anyone you know wants to stop by.  I am anxious to see Terri-Lynn’s photography.

Sunday is going to be an exciting and full-packed day – I cannot wait to see everyone, hear you all perform and for you to meet my inspiration, my son Alex, who has been inspired by Charlie Eble, https://www.spreaker.com/user/10697139/alex-hale-talks-charlie-ebe-4-28-19

If you haven’t listened to these tributes take a few minutes/ or more to listen https://www.spreaker.com/show/charlie-eble-day-may-19-2019-cafe-lena

To Touch or Not To Touch – that is the question!

I am asking because I am confused!  When is friendly too friendly?  In the past, family, friends, neighbors, and newly acquainted individuals hugged, touched, and even kissed, without sexual intent or disrespect of invading space.  Most of the baby boomers were brought up in an environment was touch appropriate; it was for comfort, appreciation, as well as a common form of communication.  I am not disavowing that some of these connections may go array whether intentionally or with intent.  However, when did we get so sensitive to expect that a kiss on the head, hand, the cheek is something more than a mere gesture of respect or showing appreciation.  Why is it ‘OK’ for men to hug and tap each other on the shoulder but when a man treats a female equally it is considered too personal and display sexually desire?.

I do not want to live in a world where people are afraid to touch each other or share a conversation that may each work and innuendo is scrutinized.  The “ME TOO MOVEMENT” has does a wonderful thing by bringing inappropriate behavior to the forefront; however, it has destroyed what is natural in the human species, connection.  I am not defending or accusing anyone of poor behavior while we must begin to understand that not everything communicated is in “poor or inappropriate taste,” we should be cognizant of what is acceptable in a human connection.

 

I have shared this previously, I have been molested by a member of the medical community, the therapy taught me to how to get through the remnant of that encounter while learning to trust my instincts while still welcoming appropriate touch and speech when making a connection.  Do we want to live in a world of “Hands Off?”  If so, when will experience the warmth of another human soul?

Sharing is Caring especially when it comes to AUTISM

The following is something I read on Facebook today, although I do not know this mother personally, I understand her story all to well.  I believe her story, as I have seen this all too familiar scenario played out due to ignorance as well as unawareness to our special needs community.  Our communities are not comprised of all perfectly “normal” human specimens.  In fact, the quote that normal is only a setting on a washing machine or dryer is very true.  As we are all snowflakes, not one of us is identical to another, we all have our quirks.

When will we learn to be tolerant, accepting, and encompass the diversities we encounter on a daily basis?  When trusted medical doctors, nurses, and other healthcare officials cannot be trusted, it is time to change the system.  Approximately 17 years ago a Psychiatrist at the Cuyahoga County Board of Mental Retardation, informed my son (who was 11 at the time), my husband and myself, that he (our son) should give up his dreams and passion for baseball.  She told him his dreams were too lofty and that he was destined to living in a half-way house and performing menial jobs.

As parents, we refused to listen, and we argued with her that she was wrong despite a complete case study she provided us with to prove her point.  Today, not only did my son graduate high school with a 3.0+ GPA, attend college and receive a BS in Business Management, he has also been an Autism Advocate, and for over a year he has worked with the Cleveland Indians and has accepted two advancements.  He is living his passionate dream despite the ignorance of a “trusted” professional.  If we had listened and given into her diagnosis (not the one of our son’s neurologist) we would have not only ruined our son’s life but destroyed much of ours as well.

Anyone who knows someone on the spectrum most likely has a similar story, and we must continue to bring the REAL SPECTRUM AWARE to light.  April may be Autism Awareness Month, but for the one out of sixty-four and their families, Autism Awareness must be every day.  #IGNORANCENOTACCEPTED! #webothhavesonsbythenameofAlex

 

APRIL IS AUTISM AWARENESS/ACCEPTANCE MONTH
Why this is so important to me and many of my very dear friends…

Our story that changed me forever…

June 2015 Alex had a horrible sinus infection. He was in terrible pain, but because his verbal skills are limited, he did not know how to express how he was feeling. All he knew is he needed relief from the pain. He ended up hitting himself which resulted in 2 black eyes. As my poor “Gentle Giant” baby was lying in bed that night, his eye started to bleed. Although I was very skeptical on how he would be treated there I knew (thought) he needed to go to the hospital where they would give him something to make him feel better.  And that my friends is where Alex and my Horrific Nightmare Began…

Before this, I think we kind of lived in a bubble. Beachwood is kind of a small town where most people know each other. So most people knew Alex for the funny, smart, fun loving, Gentle Giant he is. On top of that, he attended an Autism School. So acceptance in the community was just part of our world. Never did I imagine he would go to a hospital 10 minutes away from our house where the minute he came through the doors, he was treated like a monster.

All these doctors saw was a 6’4” man with 2 black eyes not happy. They didn’t care that he was not happy because he was in pain. When I told them he had autism, they actually said to me “We have never had anyone here with autism before” I called Bullshit on them. “Really? 1 in 64 and he is your first?”

They put him in 4 point restraints and sedated him. They would not treat his sinus infection even though I insisted. I stayed with him 24/7. I slept in a metal folding chair and only left for a couple each night when someone I trusted at the time would come so I could shower. I heard and saw everything that went on. I would tell them he is in pain. I would beg them to give him something for his pain. They would say “He is sedated he doesn’t feel anything” I could see he was in pain. They didn’t care. To them, he wasn’t a person. He got pneumonia and ended up on a ventilator. This went on for 3 WEEKS! I fought with them, I yelled they DIDN’T CARE!! I tried telling them what a wonderful boy he is. THEY DIDN’T CARE!! To them he was a very large disabled “monster” The doctors would talk around me. Like I wasn’t there. They told me if he got out they wanted to send him to a mental hospital. They treated him like a crazy monster. They didn’t care; I was his mother and legal guardian. They acted like I knew nothing about him. They didn’t believe anything I told them. Me and others that saw him never said the words but knew he was going to die there. They were going to kill him. I begged for him to get transferred out of there. I thought of ways to sneak him out. Finally, after 3 weeks, they sent him by ambulance to the main Clinic where after 2 more weeks they were able to get him off the ventilator. He was left immobile. They wanted to send him to rehab, and I said “NO. NO MORE. I WILL DO ANYTHING AND EVERYTHING TO HAVE HIM REHAB AT HOME!”

Thank God Alex has the Fershtman determination and hard work ethic. It took a while but he had to learn to walk and feed himself again. And most importantly he had to learn to TRUST again.
He had nightmares from this experience. I slept with him every night for 1 year. I still have nightmares. And unlike Alex, I have not learned to trust again.
You know how they say “Once you are in Hell nothing else frightens you” It is true. I was there and I do not get intimidated by anything anymore. Alex and I are both fighters. We are survivors. If we made it through Hell we can make it through anything!
Even making this move. I knew it was the best thing for both of us but I thought the transition might be a little hard for him. However, I knew we would get through it. If we survived our horrific nightmare we would survive transition issues. Thankfully he has been so happy here since day one! I promise This will NEVER HAPPEN TO ALEX AGAIN! I WILL DO ANYTHING AND I REALLY MEAN ANYTHING TO MAKE SURE IT DOESN’T!! And I also promise I will make sure everybody will always treat him as the sweet, loving funny person he is!

AND WE AS A COMMUNITY NEED TO MAKE SURE THAT WHAT HAPPENED TO ALEX NEVER EVER HAPPENS TO ANYONE AGAIN!!!

REMEMBER, PEOPLE WITH DIFFERENT NEEDS ARE STILL PEOPLE AND DESERVE TO BE TREATED AS PEOPLE!!! NOBODY’S LIFE IS WORTHLESS BECAUSE THEY HAVE ANY KIND OF SPECIAL NEEDS!!!

And I don’t care who you are if I hear you say otherwise I will call you out on it every time!!!

THIS IS NOT A POLITICAL STATEMENT SO PLEASE DON’T MAKE IT ONE!
THIS IS A STATEMENT ABOUT PEOPLE PERIOD!!!
AND A STATEMENT ABOUT AUTISM AWARENESS AND ACCEPTANCE!!

ps. I cannot promise that this is my only Autism Post this month… so Buckle Your Seatbelts Kids!!

***Annette Scott & Sandi Fershtman – thank you for sharing and now let’s home we can touch the hearts of humanity (and medical professionals) to understand that Autism touches us all!