life changes

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WEBSITE what a “F”ing mess!

For the last four days, I have been playing with the website, or attempting to and spending most of my time on the phone with GODADDY, who is helpful, but the situation has been annoying.  The first REP tells me that I am accessing my website incorrectly.  However, I have been accessing it in the same manner for almost three years and had no real problems until this weekend.  Although he initially got me into my site, it stopped working.

 

 

Call #2 instructed me that WordPress had issues and that since I was not paying for a secure website I was encountering these errors and it would only get worse.  They want on to explain viruses, etc., and scammers who debug and bug the media and if I had a secure website with them, they would be responsible for the fixes and if anyone got infected visiting my site.  Another insurance policy needed, and $1000 plus spent that newclevelandradio.net doesn’t have but we had to find it!

OOPS – Call #3 site still not working and now I am told the server we were on had problems, therefore, denying me access to my pages.  I was kindly told they would inform me when the site was repaired.  Did you get that email or phone call, I didn’t but it appears to be working.  Also in the URL address, there is a lock for security so my money is going to good use – I hope!

 

 

 

 

newclevelandradio.net is now venturing out to add sponsors to our webpage.  We will have their adds link to their websites and or Facebook page or phone # whatever works for them.  It is important for us to continue to support individuals, like yourself, to have the strength to follow your journey through the challenges of life.  We also hope to bring you more podcasting that will assist you to face your daily challenges.

If you or anyone you know would like to sponsor our website and or podcast with us, we would like to hear from you, WE ACCEPT PAYPAL.

 

What is wrong with this picture? 

What is wrong with this picture?  A friend of mine had a surgical procedure today, and before going to the hospital, she had to pay her deductible, if it had not been met.  Most of us have high deductibles as we cannot afford the insurance with anything less.  Additionally, as she was prepped for surgery, the hospital staff tried adding on tests that would have padded her bill to the tune of $7,000.  Really, where is the average patient going to come up with this kind of money?

 

 

Just yesterday I heard, President Donald Trump, tell the media that our economy is the best it’s been in 50 years, and we have the lowest unemployment rate.  However, that was not a truthful statement, since more people are working multiple jobs to make ends meet, and a majority of Americans are working various part-time assignments, that doesn’t bode well for Donald’s lack of knowledge.  What he and his cronies do not understand employers do not have to offer benefits when you are not part of the full-time work core.  Benefits not only include insurance, but paid time off for illness, personal, and need vacation/rejuvenation time.  When so many of us are displaced workers earning less than our education and experience totals, the communities we live in begin to suffer.  We wonder why customer service has been a lost art;  that can easily be explained when individuals feel that they are not appreciated.  Do You Feel Appreciated?

 

I have been asked why I am so anti-Donald Trump, and my answer begins with the above.  How many times can anyone distort the truth and have so many people believe they are truthful when the reality is DECEIT?  I refuse to be lead to slaughter.  Since I began writing this blog, it has been noted in the news that our financial position here in the United States is not as good as (the wealthy) may have been thought.  Additionally, the unemployment rate is not as low as announced it does not take in to affect all the individuals working part-time since companies have cutback to avoid paying benefits, like the ones I described above.

 

So what is the real truth?  The real truth is America has been GREAT; however, it is faltering.  It is up to us to learn from the mistakes that have occurred and turn things around.  It begins with communication and collaboration of ideas and ideals.  We can do it, and we must do it!  Will you join me?

Happy Birthday A L E X

17 August 1990 at 9:31 am Alex Edwin Hale was born!

Somebody said that it couldn’t be done, but Rich and I didn’t listen!

It took numerous visits to the infertility clinic and many disappointments, including a miscarriage and just days before the invitro, I was molested by a doctor!  I almost did not go through the procedure, but with Richard’s support and love and our desire to have a child together, I am so glad I did!  The sticky sperm separated enough to fertilize the egg that would develop into Alex, our son.

Today 29 years later, I could not be happier with the young man he is.  He too has had his battles from infancy to today, but he continues to get stronger with the adversity of life and is a joy to all who get to know him.  Alex continues to amaze me with the knowledge he possesses and the kind heart that is very vulnerable.  His talents are remarkable, and yet he does not boast or think he is above or beyond others.

Alex is always the first as well as the last one to care for another, and he lives his life-giving to others, that is his true happiness.

To say I love him to the Moon and Back is not enough to express my mother’s love and respect for him.  Join me in wishing Alex (the sports genius with the melodic voice) a H A P P Y B I R T H D A Y!

#1 Going Forward

Today is the day I begin my dream.  Dreams are not just for sleep or zoning out in the middle of the day.  Although that form of dreaming can be inspirational if we focus on what we want and set goals to reach it.  If we don’t, we can be stranded in the what if’s of life.  I refuse to be trapped in my thoughts as I have spent a large portion of my life dreaming, wishing, and wanting.  I have ventured out into the what appears to be the cold dark world with doubters. This time, I will not be stopped by those who chose to impact me negatively.

 

When I elected to take this venture into writing, I began with blogging.  I believe the best blogs I have written are based on self-reflection that others may associate with.  When I receive feedback, I experience an overwhelming sense of wellbeing that I am not the oddity I thought I was.  Blogging, journaling, or writing a book can give me/you a clear picture of the meaning of life.  (Don’t worry I am not going to get deep and dark here.)

 

So, have you guessed my dream?  It is writing a book based on my blogging journals that may not only be my story but yours as well.  I am beginning the climb up the mountain, and I will continue forging ahead.

 

I am looking forward to the feelings of achievement that only I am capable of producing for myself.  I hope you will join me on my climb while I reach for the apex

New Day Monday

Good Morning World!  Although we all may feel safe in the cocoon of our own home, family, and friends, there are many outside forces producing unrest and fear.  It is necessary for us, you, me, and all those we know to take a step out of our comfort zones and begin challenging the odds.

 

 

 

 

Whether you watched the ABC special last night of the “Flying Wallendas” crossing over Times Square, it was fearful as well as amazingly exciting.  Although this is not a feat for most of us to attempt, the concept of facing one’s fears and taking one step at a time is something we all can and should do.

 

 

 

 

 

Despite our political beliefs, we must find a way to collaborate and communicate.  The art of communication is listening and dissecting fact from fiction.  If we do not confront our distress of the real news and listen only to the fake news, we will not be capable of moving forward and growing.

 

 

 

On this first Monday of Summer 2019, find the sunshine behind the clouds, and be the change you want to see in this overwhelming world.  Take a deep breath and smell the roses, the rain, the freshness of life.  If it feels musty and moldy, this is your opportunity to light the way and clean up the remnants.

 

 

 

 

Empower yourself while lending a hand to those who may need guidance.

Who Said Life IS FAIR?

2 June 2019

So you say life isn’t fair, it’s difficult to find a job, create a successful relationship, and find true happiness.  However, if I have learned one thing in life, nothing comes easy that is worthwhile keeping.  I too have felt these same pangs believing I was the only one struggling in a career, with family, friends, and most of all, self-acceptance.  Acceptance does not mean not trying to improve or look for self-satisfaction, it means finding something about yourself to believe in.

 

This past week has been a rollercoaster of emotions.  It began with not knowing if my husband had/has a job or not.  Although the situation is not resolved after the initial shock that he may need to make some changes that will affect us both, we both had to grieve, take a deep breath, and keep taking steps in a forward and lateral direction, backward was not/is not a choice.

 

Change is not easy, even if it’s a choice we make.  Any change can be scary and can make for a lot of discomforts.  Before looking in the mirror and making any alterations, we must appreciate what we have on a daily basis — find one thing, and it will multiply to two, three, or more.  “Life is really simple, but we insist on making it complicated.”  So when a curve ball is thrown, we either catch it or hit it out of the park.  Catching it may throw us off balance or even sting a bit, hitting it out of the park, however, empowers us to make a choice to change!

 

 

 

Empowerment is a choice and prepares us for the rollercoaster of life.  Preparation allows us to be more aware of our surroundings and the fork in the road that lays up ahead.

“Don’t Forget to Laugh”

Last night I had the pleasure of being part of a great event, “Don’t Forget to Laugh” organized by Melinda Smith of Heart Mojo, https://www.spreaker.com/show/heart-mojo-with-melinda-smith.  The entertainment consisted of four amazing comics all with heart and soul; Bill Benden, Tim Folger (no relation to the coffee), Mike Conley, and Michael Gershe.  This talented group of individuals donated their time, energy and passion for an evening to support the Alzheimer’s Association.

 

Melinda Smith has a walk team to support the important message that only money for continued research will help eliminate, cure, or reduce the incidents of this mind altering disease.  It is not just the individual that experiences the loss of memories that suffers but all that engage with them.  Although this disease is not life-threatening, it destroys the nerves that connect in the brain that makes it difficult or impossible to do common every day things like, dressing, eating, and worst of all living in a fog of confusion.  Like many of us, Linda had the experience of watching her grandmother live out her life with this disease.  In fact, not only did her mother become a caregiver but Linda did as well, out of love and need for a family member.

Last night’s event is just one of several Melinda Smith will be coordinating to raise awareness and financial support for Alzheimer’s and Dementia which is kin to this disease.  “Don’t forget to Laugh,” was held at the Funny Stop in Cuyahoga Falls.  Owner Pete Barakat of the club graciously provided the space for this comedy event.  Watch for more information on “Don’t forget to Laugh” coming to Cleveland, and other areas where we can come together to support ourselves and others to help in finding a cure.

 

On a side note,  I want to share that studies show that laughter and music help heal parts of the brain.  So keep laughing, do not lock it away.

Laugh to Keep From Crying Madonna

I can’t lock my door 
Oh, I don’t have no privacy
The only thing that’s mine
Is what’s inside of me

When I’ve had enough
A little voice inside
It says you’ve got to be tough
You’ve got to take it in stride

Sometimes I am foolish
I let it get the best of me
At least I know that my mistakes
Are my responsibility
And

I just have to laugh to keep from crying
I just have to laugh to keep from crying

I don’t have a dime
Oh, to buy those pretty things
But I hear all the evidence
You know it all sounds the same

But I’m still waiting
I’ve got my hands open wide
You know my dream isn’t fading
I keep it hidden inside
Oh

I just have to laugh to keep from crying
I keep on trying

My friends don’t understand
Oh, they think I’ve lost my mind
And I’m choking back the tears
I’ve got to swallow my pride

I just have to laugh, ah
La, ah
Lo, oh
La, ah

Songwriters: CICCONE MADONNA L / BRAY STEPHEN PATE
Laugh to Keep From Crying lyrics © WB Music Corp., Webo Girl Publishing Inc., Momma Hattie’S Muse, COPYRIGHT CONTROL (NON-HFA), WEBO GIRL PUBLISHING, INC., WB MUSIC CORP. O/B/O WEBO GIRL PUBLISHING, INC.

To Touch or Not To Touch – that is the question!

I am asking because I am confused!  When is friendly too friendly?  In the past, family, friends, neighbors, and newly acquainted individuals hugged, touched, and even kissed, without sexual intent or disrespect of invading space.  Most of the baby boomers were brought up in an environment was touch appropriate; it was for comfort, appreciation, as well as a common form of communication.  I am not disavowing that some of these connections may go array whether intentionally or with intent.  However, when did we get so sensitive to expect that a kiss on the head, hand, the cheek is something more than a mere gesture of respect or showing appreciation.  Why is it ‘OK’ for men to hug and tap each other on the shoulder but when a man treats a female equally it is considered too personal and display sexually desire?.

I do not want to live in a world where people are afraid to touch each other or share a conversation that may each work and innuendo is scrutinized.  The “ME TOO MOVEMENT” has does a wonderful thing by bringing inappropriate behavior to the forefront; however, it has destroyed what is natural in the human species, connection.  I am not defending or accusing anyone of poor behavior while we must begin to understand that not everything communicated is in “poor or inappropriate taste,” we should be cognizant of what is acceptable in a human connection.

 

I have shared this previously, I have been molested by a member of the medical community, the therapy taught me to how to get through the remnant of that encounter while learning to trust my instincts while still welcoming appropriate touch and speech when making a connection.  Do we want to live in a world of “Hands Off?”  If so, when will experience the warmth of another human soul?

Sharing is Caring especially when it comes to AUTISM

The following is something I read on Facebook today, although I do not know this mother personally, I understand her story all to well.  I believe her story, as I have seen this all too familiar scenario played out due to ignorance as well as unawareness to our special needs community.  Our communities are not comprised of all perfectly “normal” human specimens.  In fact, the quote that normal is only a setting on a washing machine or dryer is very true.  As we are all snowflakes, not one of us is identical to another, we all have our quirks.

When will we learn to be tolerant, accepting, and encompass the diversities we encounter on a daily basis?  When trusted medical doctors, nurses, and other healthcare officials cannot be trusted, it is time to change the system.  Approximately 17 years ago a Psychiatrist at the Cuyahoga County Board of Mental Retardation, informed my son (who was 11 at the time), my husband and myself, that he (our son) should give up his dreams and passion for baseball.  She told him his dreams were too lofty and that he was destined to living in a half-way house and performing menial jobs.

As parents, we refused to listen, and we argued with her that she was wrong despite a complete case study she provided us with to prove her point.  Today, not only did my son graduate high school with a 3.0+ GPA, attend college and receive a BS in Business Management, he has also been an Autism Advocate, and for over a year he has worked with the Cleveland Indians and has accepted two advancements.  He is living his passionate dream despite the ignorance of a “trusted” professional.  If we had listened and given into her diagnosis (not the one of our son’s neurologist) we would have not only ruined our son’s life but destroyed much of ours as well.

Anyone who knows someone on the spectrum most likely has a similar story, and we must continue to bring the REAL SPECTRUM AWARE to light.  April may be Autism Awareness Month, but for the one out of sixty-four and their families, Autism Awareness must be every day.  #IGNORANCENOTACCEPTED! #webothhavesonsbythenameofAlex

 

APRIL IS AUTISM AWARENESS/ACCEPTANCE MONTH
Why this is so important to me and many of my very dear friends…

Our story that changed me forever…

June 2015 Alex had a horrible sinus infection. He was in terrible pain, but because his verbal skills are limited, he did not know how to express how he was feeling. All he knew is he needed relief from the pain. He ended up hitting himself which resulted in 2 black eyes. As my poor “Gentle Giant” baby was lying in bed that night, his eye started to bleed. Although I was very skeptical on how he would be treated there I knew (thought) he needed to go to the hospital where they would give him something to make him feel better.  And that my friends is where Alex and my Horrific Nightmare Began…

Before this, I think we kind of lived in a bubble. Beachwood is kind of a small town where most people know each other. So most people knew Alex for the funny, smart, fun loving, Gentle Giant he is. On top of that, he attended an Autism School. So acceptance in the community was just part of our world. Never did I imagine he would go to a hospital 10 minutes away from our house where the minute he came through the doors, he was treated like a monster.

All these doctors saw was a 6’4” man with 2 black eyes not happy. They didn’t care that he was not happy because he was in pain. When I told them he had autism, they actually said to me “We have never had anyone here with autism before” I called Bullshit on them. “Really? 1 in 64 and he is your first?”

They put him in 4 point restraints and sedated him. They would not treat his sinus infection even though I insisted. I stayed with him 24/7. I slept in a metal folding chair and only left for a couple each night when someone I trusted at the time would come so I could shower. I heard and saw everything that went on. I would tell them he is in pain. I would beg them to give him something for his pain. They would say “He is sedated he doesn’t feel anything” I could see he was in pain. They didn’t care. To them, he wasn’t a person. He got pneumonia and ended up on a ventilator. This went on for 3 WEEKS! I fought with them, I yelled they DIDN’T CARE!! I tried telling them what a wonderful boy he is. THEY DIDN’T CARE!! To them he was a very large disabled “monster” The doctors would talk around me. Like I wasn’t there. They told me if he got out they wanted to send him to a mental hospital. They treated him like a crazy monster. They didn’t care; I was his mother and legal guardian. They acted like I knew nothing about him. They didn’t believe anything I told them. Me and others that saw him never said the words but knew he was going to die there. They were going to kill him. I begged for him to get transferred out of there. I thought of ways to sneak him out. Finally, after 3 weeks, they sent him by ambulance to the main Clinic where after 2 more weeks they were able to get him off the ventilator. He was left immobile. They wanted to send him to rehab, and I said “NO. NO MORE. I WILL DO ANYTHING AND EVERYTHING TO HAVE HIM REHAB AT HOME!”

Thank God Alex has the Fershtman determination and hard work ethic. It took a while but he had to learn to walk and feed himself again. And most importantly he had to learn to TRUST again.
He had nightmares from this experience. I slept with him every night for 1 year. I still have nightmares. And unlike Alex, I have not learned to trust again.
You know how they say “Once you are in Hell nothing else frightens you” It is true. I was there and I do not get intimidated by anything anymore. Alex and I are both fighters. We are survivors. If we made it through Hell we can make it through anything!
Even making this move. I knew it was the best thing for both of us but I thought the transition might be a little hard for him. However, I knew we would get through it. If we survived our horrific nightmare we would survive transition issues. Thankfully he has been so happy here since day one! I promise This will NEVER HAPPEN TO ALEX AGAIN! I WILL DO ANYTHING AND I REALLY MEAN ANYTHING TO MAKE SURE IT DOESN’T!! And I also promise I will make sure everybody will always treat him as the sweet, loving funny person he is!

AND WE AS A COMMUNITY NEED TO MAKE SURE THAT WHAT HAPPENED TO ALEX NEVER EVER HAPPENS TO ANYONE AGAIN!!!

REMEMBER, PEOPLE WITH DIFFERENT NEEDS ARE STILL PEOPLE AND DESERVE TO BE TREATED AS PEOPLE!!! NOBODY’S LIFE IS WORTHLESS BECAUSE THEY HAVE ANY KIND OF SPECIAL NEEDS!!!

And I don’t care who you are if I hear you say otherwise I will call you out on it every time!!!

THIS IS NOT A POLITICAL STATEMENT SO PLEASE DON’T MAKE IT ONE!
THIS IS A STATEMENT ABOUT PEOPLE PERIOD!!!
AND A STATEMENT ABOUT AUTISM AWARENESS AND ACCEPTANCE!!

ps. I cannot promise that this is my only Autism Post this month… so Buckle Your Seatbelts Kids!!

***Annette Scott & Sandi Fershtman – thank you for sharing and now let’s home we can touch the hearts of humanity (and medical professionals) to understand that Autism touches us all!

 

Could a, Would a, Should a – Follow the Path 2 Day!

Good morning world, it is Saturday, March 30th, just two days before April 1st, also known as April Fools Day!  Well, I don’t plan to fool you or anyone else, what I am planning to do is to fully continue living my life and appreciate each sunrise and sunset even if it is Cloudy & Grey.  As I look at the various messages on Facebook, Twitter, and Instagram I am reminded that we only have one life to live and that is now in the present.  We can think of the could a’s, should a’s and would a’s but that would mean something else would have transpired and we cannot guarantee that is the result we would want.  However today we can choose the path and take the journey of life and see where it leads.  Remember every path as curves, turns, ups and downs, the obstacles are what gives us the strength to sort through these challenges.